Pediatric Diabetes Care in Norway. Glycemic results and Health-Related Quality of Life. The Norwegian Childhood Diabetes Registry (NCDR)

In Norway, a variety of efforts have been made to improve pediatric diabetes care and to support children with diabetes in the best possible way. The overall aims of this study were to study the glycemic status, characterized by HbA1c, and the incidence of diabetic ketoacidosis and severe hypoglycemia, and the diabetes-specific health-related quality of life (HRQOL) of children and adolescents with type 1 diabetes (T1D) in Norway. The study 

is based on data collected for NCDR from 2013 to 2022, including 27,214 annual registrations of 6,775 children and adolescents (0-17 years) with T1D and HbA1c levels analyzed at the same DCCT reference laboratory. In addition, we used the results of a survey on diabetes-specific HRQOL conducted as part of the 2017 annual NCDR data collection.

Primary Investigator

  • Heiko Bratke, M.D., PhD student

  • Torild Skrivarhaug, M.D., PhD, Professor, main supervisor

Co-investigators/participants

  • Eva Biringer, MD, Senior researcher, The Department of Research and Innovation, Helse Fonna HF

  • Hanna Dis Margeirsdottir, MD, Oslo University Hospital

  • Pål R. Njølstad, MD, PhD, Professor, University of Bergen, Haukeland University Hospital, Bergen, Norway

News from 2024

Abstract ISPAD-2024, Lisboa. 00051

Heiko Bratke, Eva Biringer, Anastasia Ushakova, Hanna Dis Margeirsdottir, Pål R. Njølstad, Torild Skrivarhaug

Ten years of improving glycemic control in pediatric diabetes care in Norway. Do we need a different approach for the girls?

Publications 2024

Heiko Bratke, Eva Biringer, Anastasia Ushakova, Hanna Dis Margeirsdottir, Siv Janne Kummernes, Pål R. Njølstad, Torild Skrivarhaug

Ten Years of Improving Glycemic Control in Pediatric Diabetes Care: Data from the Norwegian Childhood Diabetes Registry

Diabetes Care 2024;47:1122-1130     https://doi.org/10.2337/dc24-0086'

Other scientific or public outreach activities 2024

The article above had an editorial commentary published in the same paper:

Halis Kaan Akturk

Access to Diabetes Care Should Be a Universal Right for People With Type 1 Diabetes: Lessons Learned From the Norwegian Childhood Diabetes Registry

Diabetes Care 2024;47:1111-1113       https://doi.org/10.2337/dci24-0002